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It Doesn't Have to Hurt

Pain in juvenile idiopathic arthritis

Parent perspectives of arthritis-related pain

We know that pain is a common experience in childhood arthritis, and that it is often due to both the disease itself and some of the treatments. In partnership with Cassie & Friends, we launched an online survey to better understand parents’ thoughts and feelings about their child’s treatment-related pain, and how that impacts the uptake of various treatments. The response to this survey was incredible! Over 300 families took part from around the world.

Our survey found that indeed, pain, including treatment pain is a common experience. Over 75% of families reported that their child was prescribed a treatment that involved some degree of pain (e.g., self-injections), and over 2/3 of families reported that their child experienced painful side effects. We published a paper of these results if you want to learn more (see link below in News and Media)

Thank you to all the families who took part!

We are currently contacting some of the survey participants for follow up interviews to better understand their experiences with their child’s treatments. Check back for more updates in the coming months!

This study has been approved by the IWK Health Centre Research Ethics Board.

 


Featured News

When what helps hurts - Quand ce qui soulage fait mal

January 30th, 2020

Yvonne Brandelli was invited to present her research at "PAINtalks 2019" Organized by the Quebec Network of Junior Pain Investigators (QNJPI RQECD; le Réseau québécois des étudiants-chercheurs sur la douleur) Watch to learn more about the experience of pain in...

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Paper: Parents, Pain, and Treatment Adherence in Juvenile Idiopathic Arthritis

September 20th, 2019

A new paper, led by PhD student, Yvonne Brandelli, has been published in The Journal of Pediatric Psychology, Parent Pain Cognitions and Treatment Adherence in Juvenile Idiopathic Arthritis. Thank you to The Arthritis Society, Maritime SPOR Support Unit, and the...

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The Paradox of Arthritis Pain: When What Helps Hurts (People’s Choice Award)

March 25th, 2019

Congratulations to PhD student, Yvonne Brandelli, who was the recipient of the 2019 People’s Choice Award for Dalhousie University's 3-Minute Thesis Competition. Click here to watch Yvonne's award winning talk on YouTube.  

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It Doesn’t Have to Hurt: Take the survey to help better understand JIA pain

October 26th, 2018

Our partners at Cassie & Friends published a blog post on our research. Click here to read more.

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Research Team


Yvonne Brandelli

Co-Principal Investigator (Trainee)

Dalhousie University

Christine Chambers

Co-Principal Investigator (Supervisor)

Dalhousie University & IWK Health Centre

Jennifer Wilson

Co-Investigator

Cassie & Friends

Jennifer Stinson

Co-Investigator

The Hospital for Sick Children & University of Toronto

Adam Huber

Co-Investigator

Dalhousie University & IWK Health Centre

Perri Tutelman

Co-Investigator

Dalhousie University

IWK Health Centre
Centre for Pediatric Pain Research
Dalhousie University