We know that pain is a common experience in childhood arthritis, and that it is often due to both the disease itself and some of the treatments. In partnership with Cassie & Friends, we launched an online survey to better understand parents’ thoughts and feelings about their child’s treatment-related pain, and how that impacts the uptake of various treatments. The response to this survey was incredible! Over 300 families took part from around the world.
Our survey found that indeed, pain, including treatment pain is a common experience. Over 75% of families reported that their child was prescribed a treatment that involved some degree of pain (e.g., self-injections), and over 2/3 of families reported that their child experienced painful side effects. We published a paper of these results if you want to learn more (see link below in News and Media)
We are currently examining the information we learned from the follow-up interviews that we recently conducted to better understand their experiences with their child’s treatments. Check back for more updates in the coming months!
This study has been approved by the IWK Health Centre Research Ethics Board.
“Every furrow of her brow makes me want to stop” If you have ever struggled to give your child an injection or to manage your child’s – or your own – emotions about their treatments, you are not alone! In...
Read MoreThe Arthritis Society: Top 10 Research of 2020 Congratulations to Yvonne Brandelli, whose work was featured at one of The Arthritis Society's Top 10 Research Advances of 2020! Click here to read more about Yvonne's work on "How parents influence...
Read MoreYvonne Brandelli was invited to present her research at "PAINtalks 2019" Organized by the Quebec Network of Junior Pain Investigators (QNJPI RQECD; le Réseau québécois des étudiants-chercheurs sur la douleur) Watch to learn more about the experience of pain in...
Read MoreA new paper, led by PhD student, Yvonne Brandelli, has been published in The Journal of Pediatric Psychology, Parent Pain Cognitions and Treatment Adherence in Juvenile Idiopathic Arthritis. Thank you to The Arthritis Society, Maritime SPOR Support Unit, and the...
Read MoreCongratulations to PhD student, Yvonne Brandelli, who was the recipient of the 2019 People’s Choice Award for Dalhousie University's 3-Minute Thesis Competition. Click here to watch Yvonne's award winning talk on YouTube.
Read MoreOur partners at Cassie & Friends published a blog post on our research. Click here to read more.
Read MoreDalhousie University
Dalhousie University & IWK Health Centre
Cassie & Friends
The Hospital for Sick Children & University of Toronto
Dalhousie University & IWK Health Centre
Dalhousie University
IWK Health Centre
