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Pain in childhood cancer survivors

Understanding the pain experience in childhood cancer survivors

Pain is a common experience during cancer treatment, but for some children and adolescents, the pain isn’t over when the cancer ends. This research sought to better understand the pain experience in childhood cancer survivors.

Watch our video summarizing our research:

Check out our published journal articles:

Tutelman, P.R., Chambers, C.T., Noel, M., Heathcote, L.C., Fernandez, C.V., Flanders, A., MacLeod, J., Sherry, S.B., Simard, S., Stern, M., Stewart, S.H., & Urquhart, R. (2022). Pain and fear of cancer recurrence in survivors of childhood cancer. The Clinical Journal of Pain, 38(7), 484-491. doi: 10.1097/AJP.0000000000001049
Tutelman, P.R., Chambers, C.T., Heathcote, L.C., Fernandez, C.V., Flanders, A., Patton, M., Schulte, F.S.M., Guilcher, G.M.T., Simard, S., MacLeod, J., & Stern, M. (2022). Measuring fear of cancer recurrence in survivors of childhood cancer: Development and preliminary validation of the FCRI-Child and FCRI-Parent versions. Psycho-Oncology, 31(6), 911-919. doi: 10.1002/pon.5879
Tutelman, P.R., Chambers, C.T., Cornelissen, L., Fernandez, C.V., Flanders, A., MacLeod, J., Sherry, S.B., Stewart, S.H., Urquhart, R., de Gagne, S., Guilcher, G.M.T., Hashmi, J., Heathcote, L.C., Noel, M., Schulte, F.S.M., Stinson, J.N., & Stern, M. (2022). Long-term alterations in somatosensory functioning in survivors of childhood cancer. PAIN, 163(6), 1193-1205. doi: 10.1097/j.pain.0000000000002486
Tutelman, P.R., Chambers, C.T., Urquhart, R., Fernandez, C.V., Heathcote, L.C., Noel, M., Flanders, A., Guilcher, G.M.T., Schulte, F.S.M, Stinson, J.N., MacLeod, J. & Stern, M. (2019). When “A Headache is Not Just a Headache”: A qualitative examination of parent and child experiences of pain after childhood cancer. Psycho-Oncology, 28(9), 1901–1909. doi: 10.1002/pon.5170.

 

These studies were approved by the IWK Health Centre Research Ethics Board.


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News and Media

Clinical Journal of Pain: Pain and Fear of Cancer Recurrence in Survivors of Childhood Cancer

July 25th, 2022

Abstract Objectives:  Theoretical models suggest that anxiety, pain intensity, and pain catastrophizing are implicated in a cycle that leads to heightened fear of cancer recurrence (FCR). However, these relationships have not been empirically examined. The objective of this study was...

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Psycho-Oncology: Measuring Fear of Cancer Recurrence in Survivors of Childhood Cancer

January 14th, 2022

Measuring Fear of Cancer Recurrence in Survivors of Childhood Cancer: Development and Preliminary Validation of the FCRI-Child and FCRI-Parent Versions Abstract Objective Fear of cancer recurrence (FCR) is a common and distressing psychosocial concern for adult cancer survivors. Data on...

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PAIN: Long-term alterations in somatosensory functioning in survivors of childhood cancer

September 25th, 2021

Abstract Cancer and its treatment can have lasting consequences on somatosensation, including pain, which is often underrecognized and undertreated. Research characterizing the impact of cancer on pain and sensory processing in survivors of childhood cancer is scarce. This study aimed to...

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Your IWK: Award celebrates impact made by researcher

May 31st, 2021

“There is so much work to be done in the area of pain in cancer, and pain in survivorship specifically,” says Perri Tutelman, a PhD Candidate in Clinical Psychology at Dalhousie University and IWK Health. “We know that rates of...

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Research Impact Canada Engaged Scholarship Award

May 11th, 2021

Congratulations to our trainee, Perri Tutelman!   Perri was awarded a Research Impact Canada Engaged Scholarship Award for her project, "Understanding the Pain Experience in Childhood Cancer Survivors"   This award recognizes graduate students who conduct research projects following engaged...

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RELIEF: Including People with Lived Experience of Pain in the Research Process: Do It Early and Often

December 17th, 2020

Perri Tutleman was interviewed about her experience with partnering with children and their families in her research by IASP's Pain Research Forum, RELIEF. About patient engagement in her research, Perri says, “This is such a sensitive and personal experience. You...

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Psycho-Oncology: Fear of Cancer Recurrence in Childhood Cancer Survivors

October 19th, 2020

Fear of Cancer Recurrence in Childhood Cancer Survivors: A Developmental Perspective from Infancy to Young Adulthood (Psycho-Oncology) Abstract Aims: Fear of cancer recurrence (FCR) is among the most prevalent and distressing concerns reported by cancer survivors. While younger age is...

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Pain Research Forum Seminar: Pain in Survivors of Childhood Cancer

May 27th, 2020

Pain in Survivors of Childhood Cancer: A Theory-Driven Approach to an Understudied Problem (Pain Research Forum Virtual Seminar) The IASP Pain Research Forum hosted a virtual seminar with Perri Tutelman (Dalhousie University) and Dr. Lauren Heathcote (Stanford University Medical School) on...

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RELIEF: Understanding Pain Through Lived Experience

December 5th, 2019

Perri Tutelman, graduate student in Clinical Psychology at Dalhousie University under the supervision of Dr. Christine Chambers, and Maya Stern, a Patient Partner and survivor of childhood cancer, were interviewed by Stephani Sutherland for RELIEF about the goals of their...

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Pain in Survivors of Childhood Cancer: CCSRC Research Rounds

May 21st, 2019

PhD trainee, Perri Tutelman, was invited to present her research as part of the Canadian Cancer Survivorship Research Consortium (CCSRC) Research Rounds in March 17, 2019. Click here to watch the webinar on YouTube

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Pain After Childhood Cancer: A New Research Frontier

May 1st, 2018

"For the 1,000 Canadian children who are diagnosed with cancer every year, pain is a common experience." Perri Tutelman and Dr. Christine Chambers' research on pain in childhood cancer survivors is featured by Childhood Cancer Canada. Click here to read...

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Psycho-Oncology: When “A Headache is Not Just a Headache”

July 5th, 2019

A new paper related to our research on pain in childhood cancer survivors led by PhD student, Perri Tutelman has been published in Psycho-Oncology, When “A Headache is Not Just a Headache”: A Qualitative Examination of Parent and Child Experiences...

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Research Team


Dr. Perri Tutelman

Co-Principal Investigator (Trainee)

Dalhousie University

Dr. Christine Chambers

Principal Investigator

Dalhousie University & IWK Health Centre

Dr. Laura Cornelissen

Co-Investigator

Boston Children's Hospital

Dr. Conrad Fernandez

Co-Investigator

Dalhousie University & IWK Health Centre

Annette Flanders

Co-Investigator

IWK Health

Dr. Gregory Guilcher

Co-Investigator

University of Calgary & Alberta Children's Hospital

Dr. Lauren Heathcote

Co-Investigator

Kings College London

Dr. Melanie Noel

Co-Investigator

University of Calgary & Alberta Children's Hospital

Dr. Fiona Schulte

Co-Investigator

University of Calgary & Alberta Children's Hospital

Dr. Simon Sherry

Co-Investigator

Dalhousie University

Dr. Sébastien Simard

Co-Investigator

Université du Québec à Chicoutimi

Dr. Sherry Stewart

Co-Investigator

Dalhousie University

Dr. Jennifer Stinson

Co-Investigator

Hospital for Sick Children & University of Toronto

Dr. Robin Urquhart

Co-Investigator

Dalhousie University

Sitara de Gagne

Patient Partner

Julia MacLeod

Patient Partner

Maya Stern

Patient Partner

Funding and Support

IWK Health Centre
Centre for Pediatric Pain Research
Dalhousie University