Perri Tutleman was interviewed about her experience with partnering with children and their families in her research by IASP’s Pain Research Forum, RELIEF.
About patient engagement in her research, Perri says, “This is such a sensitive and personal experience. You have to wonder if people even want to talk to you about it,” said Tutelman. “But there is a lot we can learn about pain and pain management from lived experience. Many patients are very willing to partner in research because it gives meaning to their experiences and may help others in the future, so it is important to provide the opportunity. The question then becomes how to do it in the most appropriate way.”
Click here to read the article, “Including People with Lived Experience of Pain in the Research Process: Do It Early and Often”, in RELIEF